Enabling people living with autism in Scotland through the whole life journey
Much of what you have read may be familiar to you or may confirm for you that your concerns or questions are worth pursuing. It is however important to understand that the autism spectrum is more than that which we observe in relation to behaviour.
Individuals on the autism spectrum are likely to have a different way of processing information. There is a significant body of research that has advanced our understanding of the cognition or thinking styles and processes of people who are on the autism spectrum (Bowler, 2007). Applying this understanding is essential if we are to see beyond the behaviour of people on the autism spectrum.
Some Issues associated with thinking, information processing and perception are that individuals on the autism spectrum may:
Katie is 7 years old, she has a diagnosis of autism and learning disability. While her typically developing peer group were keen to interact and showed strong social awareness, Katie had a number of difficulties in this area .An example being that when using the slide Katie would push through the queuing children, as if not realising they were there and that they were put out or even physically hurt by her actions.
Johnny is a twelve year old year old boy with Asperger’s syndrome. He was excited at his mother’s forthcoming birthday and was planning a nice surprise present for her .When the day arrived he proudly presented her with a carefully wrapped box in red paper which she opened to reveal a book about aeroplanes. His mum has no interest in aeroplanes but they are a current interest for Johnny.
Michael is 16 and has Asperger’s syndrome. He travels to college everyday by bus and has become familiar with some of the other people who catch the bus at the same time as he does. Michael is very socially active and desperately wants to have friends. He often interprets the friendly behaviour of strangers as an indication that they are actual friends. This is confusing for Michael and makes him vulnerable as he will often share private information with relative strangers.
Adam is 19 has autism and when he meets a new person (irrespective of who they are or where he meets them) he will ask them a number of “questions”. They are always the same and in the same order: what’s your name, “what kind of car do you drive”, “what’s your children’s name”, “when is your birthday”. Once these questions have been asked and answered Adam walks away.
Jane is 16 and has Asperger’s Syndrome. She attends a mainstream secondary school. She is friendly with a small number of girls in her class. She is very motivated to be part of this group, but is generally passive within it. She joins in whenever possible. When in the group Jane attempts to copy the content of the group’s conversations, phrases and the other girl’s behaviour. Often when at home with her parents Jane will speak and behave exactly as if she were with her friends. She becomes distressed and frustrated when her parents do not react or engage with her as her friends did.
Matt is 17 and has Asperger’s Syndrome. He has a several friends that he meets out with school. Sometimes, when with his friends he hears jokes that are rude or sexually explicit. He usually does not understand these jokes. At home, Matt will often tell his parents and younger siblings these jokes. He is confused by the response of his parents because he has seen people laugh when told the same joke.
Dale is 9 he has autism. He can function quite independently with his dressing if the items are laid out in a pile with the first item (pants) at the top. Although he follows the sequence Dale does not understand why the clothes are set as they are. This system generally works well. However, sometimes Dale will arrive downstairs without trousers on or no school top. When checking his parents may find that an item has fallen from the bed: therefore making the sequence wrong.
Dale is not able to reorganise the clothing and is not aware that he does not have on all the items of clothing.
David is 27 he has Asperger’s syndrome. He has a part time job in a book store. His eye for and attention to detail are very useful to him and his employer in that he is able to ensure that the book shelves are always well stocked and are in good order.
The above issues may present in the form of certain types of behaviour e.g. an individual may seem remote and withdrawn. A child may appear non compliant or belligerent in school. A young adult may seem socially gauche. It is however important to go beyond a surface interpretation of such behaviour.
National and international research continues to advance our understanding of psychological theories. These, in turn, can inform our understanding of people across the autism spectrum and have the potential to inform approaches to intervention and practice.
Theorising in this area is complex. Here you will find a very basic summary of some of the key theories as well as details of where further reading can be sourced.
Baron-Cohen, S. (1995). Mindblindness. Cambridge, MA: MIT Press.
Baron-Cohen, S. (1989). The autistic child’s theory of mind: A case of specific developmental delay. Journal of Child Psychology and Psychiatry, 30, 285 – 297.
Baron-Cohen, S., Leslie, A., & Frith, U. (1985). Does the autistic child have a “theory of mind”? Cognition .21, 37-46.
Boucher, J. (2009) The Autistic Spectrum: Characteristics, Causes and Practical Issues. London: Sage.
Bowler, D. (2007). Autism Spectrum Disorders: Psychological Theory and Research. West Sussex: John Wiley and Sons.
Frith, U. (1989). Autism: Explaining the Enigma. Oxford: Blackwell.
Happe, F. (1994). Autism: an introduction to psychological theory. London: UCL Press.
Ozonoff,S., Pennington, B.F., & Rogers, S.J. (1991).Executive function deficits in high-functioning autistic individuals. Relationship to theory of mind. Journal of Child Psychology and Psychiatry,32,1107 – 1122.
Roth, I.(2010).The Autism Spectrum in the 21st Century: Exploring Psychology, Biology and Practice.London: Jessica Kingsley in association with The Open University.
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