I have two children, Nathan and Isabelle, who are autistic. Isabelle is high functioning and Nathan suffers with hypermobility and is severe and non-verbal.
Before we leave the house we need to have my son's nappies, wipes, toys, ear defenders, snack, juice and my phone in case I need emergency YouTube. Nathan is sensitive to noise and his surroundings so if he has a meltdown he may need restrained till he calms down at which point he is a danger to himself and others. He can tolerate being outside for a bit before getting very agitated and needing to come home. Due to Nathan’s hypermobility, his cognitive disabilities and behaviour, he needs to be in the wheelchair at all times when out of the house. If his nappy needs changed I need to find a disabled toilet that usually results in me having to change him on a dirty bathroom floor as he's too big for a baby changing unit. I need my son's disability access warrant for Lothian buses so his disability buggy gets the same rights as wheelchair users on the bus, but I need to rely on people folding their buggies to be able to get him on the bus or wait for another one.
Isabelle needs to be seated as near to me as possible when on public transport and I usually have to stand. She also has vasovagal syncope and gets faint and/or faints so she always needs a seat. Isabelle’s issues lie more with knowing the plan and what's happening and can get very distraught if plans change suddenly. My daughter usually has one of her teddies or snuggly as a comfort and she needs to know where we are going, why we are going there, for how long, what we're doing when we get there and what the plan is for coming home.
Generally I need myself and another adult to take them anywhere that means we are going to be out for a long period.